General Assembly: 82 (2007 Regular GA) - Chapter 31 - Hemophilia advisory committee


Published: 2007-03-30

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141 LAWS OF THE EIGHTY-SECOND G.A., 2007 SESSION CH. 31

CH. 31CH. 31

CHAPTER 31

HEMOPHILIA ADVISORY COMMITTEE

S.F. 548

ANACT creating a hemophilia advisory committee and providing a contingent effective date.

Be It Enacted by the General Assembly of the State of Iowa:

Section 1. NEW SECTION. 135N.1 SHORT TITLE. This chapter shall be known andmay be cited as the “Hemophilia Advisory Committee Act”.

Sec. 2. NEW SECTION. 135N.2 LEGISLATIVE INTENT AND FINDINGS. 1. It is the intent of the general assembly to establish an advisory committee to provide rec-

ommendations on cost-effective treatment programs that enhance the quality of life of those afflicted with hemophilia and contain the high cost of that treatment. 2. The general assembly finds inherited hemophilia and other bleeding and clotting disor-

ders are devastating health conditions that can cause serious financial, social, and emotional hardships for patients and their families. Hemophilia and other bleeding and clotting disor- ders are incurable, so appropriate lifetime care and treatment are necessities for maintaining optimum health. Advancements in drug therapies are allowing individuals greater latitude in managing their conditions, fostering independence, and minimizing chronic complications. However, the rarity of these disorders coupled with the delicate processes for producing fac- tors and administering anticoagulants makes treating these disorders extremely costly.

Sec. 3. NEWSECTION. 135N.3 ESTABLISHMENTANDDUTIESOFHEMOPHILIAAD- VISORY COMMITTEE. 1. The director of the department of public health shall establish an advisory committee

known as the hemophilia advisory committee. 2. The committee shall review and make recommendations to the director concerning but

not limited to the following: a. Proposed legislative or administrative changes to policies and programs that are integral

to the health and wellness of individuals with hemophilia and other bleeding and clotting dis- orders. b. Standards of care and treatment for persons living with hemophilia and other bleeding

and clotting disorders. c. The development of community-based initiatives to increase awareness of care and treat-

ment for persons living with hemophilia and other bleeding and clotting disorders. d. Facilitating communication and cooperationbetweenpersonswithhemophilia andother

bleeding and clotting disorders.

Sec. 4. NEW SECTION. 135N.4 MEMBERSHIP. 1. The following persons shall serve as nonvoting members of the committee: a. The director of public health or a designee. b. The director of the department of human services or a designee. c. The commissioner of insurance or a designee. 2. The following voting members shall be appointed by the director, serving three-year

terms: a. Onemember who is a board-certified physician licensed, practicing, and currently treat-

ing individuals with hemophilia or other bleeding and clotting disorders. b. One member who is a nurse licensed, practicing, and currently treating individuals with

hemophilia or other bleeding and clotting disorders. c. Onemember who is a social worker licensed, practicing, and currently treating individu-

als with hemophilia or other bleeding and clotting disorders.

142LAWS OF THE EIGHTY-SECOND G.A., 2007 SESSIONCH. 31

d. Onemember who is a representative of a federally-funded hemophilia treatment center. e. Onememberwho is a representative of an organization established under the Iowa insur-

ance code for the purpose of providing health insurance. f. Onememberwho is a representative of a voluntaryhealth organizationwhocurrently ser-

vices the hemophilia and other bleeding and clotting disorders community. g. One member who is a patient, or caregiver of a patient, with hemophilia. h. One member who is a patient, or caregiver of a patient, with a bleeding disorder other

than hemophilia. i. One member who is a patient, or caregiver of a patient, with a clotting disorder. 3. At least one of the appointmentsmade pursuant to subsection 2, paragraphs “g”, “h”, and

“i” shall be a patient with hemophilia, a bleeding disorder that is not hemophilia, or a clotting disorder. The committee appointments may be made notwithstanding sections 69.16 and 69.16A. 4. If there is a vacancy on the committee, such position shall be filled in the same manner

as the original appointment.

Sec. 5. NEW SECTION. 135N.5 MEETINGS. 1. The committee shall meet no less than four times per year and is subject to chapters 20

and 21 relating to open meetings and public records. 2. Members of the committee shall receive no compensation, butmay be reimbursed for ac-

tual expenses incurred in the carrying out of their duties.

Sec. 6. NEW SECTION. 135N.6 REPORT REQUIRED. The committee shall, by January 15, 2008, and annually thereafter, submit to the governor

and the general assembly a report with recommendations for maintaining and improving ac- cess to care for individuals with hemophilia and other bleeding and clotting disorders. Subse- quent annual reports shall report on the status of implementing the recommendations as pro- posed by the committee and on any state and national activitieswith regard to hemophilia and other bleeding and clotting disorders.

Sec. 7. CONTINGENT EFFECTIVE DATE. This Act, being deemed of immediate impor- tance, takes effect upon enactment only if an appropriation is made for the purposes of this Act.

Approved March 30, 2007

_________________________

CH. 32CH. 32

CHAPTER 32

STATEWIDE STUDENT INFORMATION SYSTEM — STUDY

H.F. 468

AN ACT requiring a study by the department of education relating to implementation of a statewide student information system.

Be It Enacted by the General Assembly of the State of Iowa:

Section 1. STATEWIDE STUDENT INFORMATION SYSTEM — STUDY. The depart- ment shall conduct a study regarding the student information systems currently in use in the state, the types of data collected, and the future needs for additional types of data at the kinder-